Let me start with something positive: we have launched a brand new website for EmBraced In Comfort. Check us out HERE. Even a “simple” website, however, can take quite some time to move from one web hosting platform to another. This transition took months and it went relatively smoothly, but it is always interesting what little changes spiral out of big ones. First, it’s setting up the site, then it’s realizing that several other things (like email) linked to the web hosting platform, too, not to mention reviews that you’ve been collecting for years. One thing leads to several others and it can feel overwhelming.
It made me think about the transition to a new diagnosis for your kids (or yourself). When my daughter was first diagnosed, we were just really shocked. Scoliosis had not been on our radar at all. We made that first transition from carefree childhood to medical difficulty. Then we made the transition to bracing, where we stayed for a long time, but each change in brace (type or new fit) required navigating even more change. And then we transitioned to surgery and recovery. Most recently, we transitioned out of the Scoliosis treatment phase all together, when my son “graduated” from his time with the pediatric orthotist. So many transitions and none were simple. Each had other problems that spiraled out of it – like how was my child going to put this brace on and off by herself? Or, how will she dress to hide it? How will she participate in sports or PE class? One transition led to another, but I still think about the biggest emotional load I bore as a parent. It was a transition from seeing my child having a carefree innocent childhood to having one of hardship, and it seemed to happen overnight. It was like a stolen innocence, of sorts. I mourned both my children’s childhoods. Yes, they still had lovely childhoods with Scoliosis, but I mourned that they would no longer be quite as carefree.
Can you relate? Just know that eventually you will be where we are now – transitioning out of Scoliosis treatment. And while it felt great to have that part of our lives done with, it had become such an integral part of our lives that it almost felt odd to let it go. It’s funny how that goes – what started as a hard transition with many problems off-shooting from it, ended with minimal fuss. Once each transition was over, we just learned to cope and it wasn’t so bad.
When I have a parent contact me and tell me that their child just got their first brace, I know they are facing one of the most difficult transitions in Scoliosis treatment. Their kids are very sore, upset, defeated, and most parents (like me) just want to cry along with them. But, I always say, “give it two weeks”. It is amazing how resilient our kids are – they navigate the transition much quicker than we anticipate. So, if you are new to bracing, please take heart in that. And, if your kiddo (or you) need help getting more comfortable in your brace, then refer back to paragraph 1 and check out our new website. We may have transitioned out of Scoliosis treatment, but we have not transitioned out of caring for those of you who are in the thick of it.
Until next time…