This week starts a two-part blog series on my recent trip with my son to visit the National Scoliosis Center in Fairfax, VA. I’ve written several articles on the work of the talented Orthotist Luke Stikeleather, which you can read HERE, HERE, HERE, and HERE. However, this was our first visit in a few years, and our first ever visit to his new clinic.
Luke creates a type of brace called the Rigo-Cheneau TLSO. Between my son and daughter, we’ve probably had him make 7-8 different braces, and we’ve never once been disappointed. I have always described him as a blend of Orthotist and artist, fitting each patient meticulously. The other benefit is that he makes the braces in-house (and sometimes lets the kids help!), so his turnaround time is between 2-3 days. This makes it simple for families (like us), who are coming from out of town. I will have more on the actual process of making a brace in next week’s article.
The first time my son went into one of Luke’s braces (several years ago), he was at a 25 degree curve. Luke recommended that he brace full time for a year, and, after that year, my son’s curve was decreased to 11 degrees. We then had him make another brace, which my son wore only at night for another year. After that, his curves stayed put for over three years, until he had his growth spurt this year. Now he is back to 25 degrees and ready for another year of nighttime bracing. We are very hopeful that he will have the same results this time as he did last time.
When we started planning our trip to Virginia, my son was not very happy about it. But, we were both looking forward to seeing Luke again. This time, I decided that I was too tired and busy to make the long drive by myself, so we cashed in some frequent flier miles and decided to fly to the area. My Aunt and Uncle live about 20 miles from National Scoliosis Center, so we usually stay with them while we are in town. We decided to fly out a few days early and do some visiting with family, because I wanted to work in some fun time. I asked my son what he wanted to do on the trip, as well as where in DC he might want to visit, but he was only interested in Pokemon Hunting (Playing Pokemon Go). Since it was HIS trip, Pokemon hunting is what we did! He had his most successful days ever, including finding a nest of Growliths right at the Washington Monument!
All in all, we had a great trip, and he is adjusting to his brace nicely. It usually takes 1-2 weeks for the soreness to subside, so he is still feeling a little achy. I would compare it to when a child first gets teeth braces. They are annoying and sore for a few weeks, but then they get used to it. They really do get used to it quickly! Emotionally, it is different for my son to process the change, since he was 9 the last time he wore a brace and now he is nearly 13. Everything is harder when you are 13. But, he’s working through it and doing a wonderful job. He grumbles when he has to put it on, but he has been very responsible about his 12 hours in the brace every day. And, I told him that he better not complain around his sister, since she had to wear a brace full time for many more years than he has had to. It’s all about perspective. Yes, we are disappointed that he had to go back into a brace, but very grateful that, through wonderful bracing and diligence on my son’s part, that his curve is still very low and manageable. And, we are so very grateful that someone like Luke Stikeleather is part of our medical team, a man full of compassion, kindness, and who is on a true mission to help Scoliosis patients. You will not be disappointed if you also choose to add the National Scoliosis Center to your medical team.