Hey guys! My name is Cindy, and I’m taking over the blog for the summer. (Maybe longer, we’ll see.) I’m 14 years old, and I’m super excited to be on the blogging team, which pretty much consists of my mom and I. If you haven’t guessed already, I’m the daughter of Tina, the creator of this blog.
Many of you have probably read about my scoliosis story on this blog, but I’m going to share the short version with you anyway. When I was six, I was diagnosed with scoliosis. The doctor said that I had approximately a 25 degree curve. The doctors advised us to wait six months, and so we did. Six months later, we return to the doctor and find that my curve had gotten much worse. (I can’t remember many details, that was a long time ago.) My parents decided to start bracing. I started wearing a Spinecor brace soon after, and wore that for about a year. (This is when EmBraced in Comfort was born.) During that time, however, my curve continued to get worse. That brace definitely didn’t work for me, but we searched for other options.
I started wearing the Rigo Cheneau brace next. Our Orthotist, Luke Stikeleather, whom I referred to as “Luke”, made my new brace. He is probably one of my favorite people on my medical team, and I still miss him today. Every year, my family would travel to Washington, D.C., which is where his office was at the time. He now works at the National Scoliosis Center.
After wearing the Rigo Cheneau for a few years, we started to see that my curve was progressing again. The Rigo had successfully kept my curve in check for a while, but apparently that time was over. We reached a decision with careful deliberation: I was going to need spinal surgery. Specifically, a spinal fusion, which involved lots of screws, hooks, and a titanium rod. At the time, I had just recently turned 12, and I was scared. A few months before the surgery, I no longer had to wear my brace, because they wanted to strengthen my back muscles before the operation. I actually fractured a rib a few months before, because my brace was too small, and didn’t even know it!
December 2013 was the month when the surgery would happen, and it was here. The date was just around the two-week mark. I was terrified. Before surgery, my curve was just below 100 degrees. After, it was approximately 45 degrees. Five awful days later, I was out of the hospital and ready to spend most of Christmas break lying down. Six months later, I was finally cleared to do all activities. It has now been two and a half years, and I’m feeling great! I play basketball, volleyball, and I lift weights. Plus, I don’t have to wear a brace anymore, which is awesome.
Since I’m the new blogger, I wanted to try something different. I want you guys to ask questions. If you have any concerns, questions, or stories of your own, I want to hear about it. If you really like this idea, and there are enough questions, I will choose a few and answer them on the blog. That way, everyone will be able to see; a lot of you might have similar questions. Think of this as a sort of a “Dear Abbie” type of thing. I’ve been through a lot of different things when it comes to Scoliosis, so hopefully I can help all of you with your questions!
See you next week!